Organisations

The Good Grief Trust

The Good Grief Trust exists to help all those affected by grief in the UK. Our vision is to find the bereaved, acknowledge their grief and provide reassurance, a virtual hand of friendship and ongoing support.

Our central national database brings all UK bereavement services together around the country, to ensure that everyone receives a choice of tailored support from day one. With over half a million deaths in the UK every year, at some time in our lives ALL of us will be affected by grief and none of us know how we will react to the death of someone close until it happens.

  • We are a solely voluntary charity, run by the bereaved, for the bereaved/
  • We aim to bring bereavement into the 21st Century and offer a fresh new insight into the way grief is managed in our country.
  • We aim to encourage talking about grief in a more honest, straightforward way, help to make the pain a little more bearable for those at the early stages and offer inspiration and hope to the bereaved to enable them to move forward with their lives.
  • Our website has a growing central UK database of around 600 bereavement support organisations under one new umbrella.   www.thegoodgrieftrust.org 
  • Our Good Grief card works along side the website, to signpost both the bereaved and those working with them directly to a choice of support, for any bereavement, anywhere in the country.
  • We aim for this card to be given to every bereaved person in the UK to as soon as possible after the death
  • Our card is being distributed via all hospitals, hospices, GPs, police, healthcare professionals, coroners, universities, schools, crematoria and so on.
  • Our Good Grief Pop Up Cafes are being launched across the UK to bring communities together to share their grief and find new local friendships - (we aim for 100 Cafes in 2020).
  • We instigated the formation of the All Party Parliamentary Group on
  • Bereavement Support, with our Chair, Carolyn Harris MP, working with
  • Government and bringing all UK charities and individual affected by grief together
  • Our social media reach is extensive with over 22,000 followers
  • Our Facebook community is an interactive online support service - with an average of 100,000 reach every month. Christmas 2018 our FB reach was 1 million.

Website; https://www.thegoodgrieftrust.org/
Facebook: https://www.facebook.com/thegoodgrieftrust/
Twitter: https://twitter.com/goodgrieftrust
Instagram: https://www.instagram.com/thegoodgrieftrust/

SUDEP Action

There are 21 epilepsy-related deaths each week in the UK – at least 42% of these are known to be
potentially avoidable.


SUDEP Action exists to increase awareness of epilepsy risks and tackle all epilepsy deaths, including Sudden Unexpected Death in Epilepsy (SUDEP). The only UK charity supporting and working alongside those whose loved ones have died suddenly from an epilepsy related death. Services include bereavement support, counselling and help with understanding the inquest process.

The support service is tailored, led by what the bereaved need and want - which can include advocacy, information, advice and involvement in research through The Epilepsy Deaths Register. The support service can also assist and empower families in their interactions with the coronial service and other agencies, this can be combined with ongoing support.

SUDEP Action provide free tools, information and resources are provided to clinicians and people with epilepsy, as well as working in collaboration with UK and international research teams to help prevent epilepsy deaths - striving to get the answers that will save lives.

http://www.sudep.org/
Contact info@sudep.org for more information.
Support team – support@sudep.org or 01235 772852
Epilepsy Deaths Register – www.epilepsydeathsregister.org

Freddies Wish

Freddie’s Wish understands no loss of a child is worse than any other.

We are here to provide support to anyone who has lost an infant or child, to help them rebuild their life, while embracing the memory of their precious child!

We aim to empathise, educate and encourage.

Website; https://freddieswish.org/
Twitter; https://twitter.com/Freddies_wish
Facebook; https://www.facebook.com/Freddieswish13/

WAY

WAY is the only national charity in the UK for people aged 50 or under when their partner died. It’s a peer-to-peer support group operating with a network of volunteers who have been bereaved at a young age themselves, so they understand exactly what other members are going through.

WAY was founded in 1997 and now has more than 3,000 members across England, Wales, Scotland and Northern Ireland. WAY aims to provide peer-to-peer emotional and practical support to young widowed people married or not, with or without children, whatever their sexual orientation – as they adjust to life after the death of their partner.

WAY Widowed and Young
Suite 14, College Business Centre
Uttoxeter New Road
Derby DE22 3WZ

Registered Charity No: 1164988

Email: enquiries@widowedandyoung.org.uk

Website: https://www.widowedandyoung.org.uk

Social Media
Facebook: https://www.facebook.com/WAYwidowedandyoung/
Twitter: https://twitter.com/WidowedAndYoung
Instagram: https://www.instagram.com/widowedandyoung/
LinkedIn: https://www.linkedin.com/company/waywidowedandyoung/
YouTube: https://www.youtube.com/watch?v=qcyygLUA20I

2Wish upon a star

Category one, Category two

2 Wish Upon A Star was founded in 2012 to support anyone affected by the sudden or unexpected death of a child or young person aged 25 and under. Emphasis for bereavement support following a death is placed upon immediate family; however we also support extended family, friends and the wider community, as well as witnesses and professionals.

2 Wish Upon A Star offer support in a number of ways including memory boxes, immediate support during the initial aftermath of the death, free and confidential counselling, complementary therapy, play therapy, as well as support groups, focussed support groups and monthly events. 

Website
http://2wishuponastar.org/

Social media
Facebook - @2wishuponastar
Instagram - @2wishuponastar
Twitter - @2wishupon

SUDC UK

SUDC UK is a charity dedicated to increasing awareness and understanding of Sudden Unexplained Death in Childhood (SUDC). It also funds research to better understand and prevent these tragedies. The sudden unexplained death of a child is one of the most under-recognised medical tragedies of our time.

Co-founded by three SUDC bereaved mothers in 2017, in memory of all SUDC children, the charity aims to make a difference by shining their light on Sudden Unexplained Death in Childhood. Our vision is for SUDC to be predictable and preventable.

SUDC UK is proud to link directly with our affiliate the SUDC Foundation for professional bereavement support. Together, our charities are the only organisations worldwide whose sole purpose is to promote awareness, advocate for research, and support those affected by sudden unexplained death in childhood.

SUDC UK is run by volunteers and provides all services at no cost to families or professionals. SUDC receives no government funding. SUDC UK is a registered charity in England and Wales (charity no 1175413).

Website www.sudc.org.uk 

Social media 
Facebook @sudcuk 
Instagram @sudcuk
Twitter @SUDCUK1

Drugfam

DrugFAM was founded in 2006 by Elizabeth Burton-Phillips MBE, in memory of her son, Nicholas Mills.

For over ten years, Nick, and his twin brother Simon, were addicted to hard drugs which had a devastating impact on both young men and drew them both into poverty, ill-health and crime. Powerless, the family lived in continual fear for Nick and Simon’s lives whilst depleting their life savings repaying the twins’ drug debts to criminal gangs. After many attempts to quit using drugs permanently; Nick ended his own life in 2004, aged just 27.

DrugFAM exists so that no family member, friend, or carer need face these challenges alone.  Last year, we supported 2,800 families and positively impacted the lives of over 800 children who had direct contact with the user.

DrugFAM’s support falls under three main pillars; Education (where we do talks, we have a book, play and a podcast), Active Addiction (where we run a helpline from 0900 to 2100, 365 days per year) and Bereavement Support (where we supported 323 families in 2018).

When someone discovers that a loved one is using drugs, they may avoid seeking help initially, often believing that they can help the addict themselves.

Sadly, this is rarely the case, and when a family member’s drug use has been prolonged or repeated, the people closest to them often realise that they simply cannot cope any longer and don’t know what to do next. This is often when families make contact with DrugFAM for the first time, seeking psychological support at a time of complex trauma and at times in moments of grief.

Links
Website: www.drugfam.co.uk
Facebook: https://en-gb.facebook.com/drugfam/
Twitter: @DrugFAM

Lighthouse

Lighthouses are a not-for-profit organisation who provide Infant Loss Support to bereaved parents of
infant loss. We facilitate weekend residential counselling retreats, 1-1 counselling and provide after-
care online support for those who have been through miscarriage, stillbirth, neonatal loss, ectopic
pregnancy, compassionate induction and the death of an infant up to the age of 5.

www.lighthousestherapyservices.co.uk
https://www.facebook.com/lighthousestherapyservices/
https://twitter.com/lighthousesLTS

St Christopher’s Hospice

At St Christopher’s we put people at the heart of everything we do. We believe that all dying people and those close to them deserve to have the best care and support, wherever and whenever they need it. We do all we can to make this happen, providing physical, emotional and spiritual support to over 7,500 people across south east London every year. People like you, your mum, your dad, your nan, your sister, your friend, your neighbour.

Many people think hospices are sad, depressing places but that couldn’t be further from the truth. We are more than just a hospice; we are the 1,350 volunteers who give their time to make sure people nearing the end of their life and their friends and family know how important they are. We are more than just a hospice; we are the hundreds of staff who work together round the clock to care for people in their homes, care homes or in our hospice buildings. We are more than just a hospice; we are the educators who are passionate about end of life care and provide courses to people all over the world to make sure that hospice services are available for more and more people, wherever they are and whatever their circumstances. We are more than just a hospice; we are the communities of people who fundraise tirelessly through all weathers to raise the £16m we need each year to continue to be here.

To everyone who has helped in any way, big or small - thank you.

Website: https://www.stchristophers.org.uk/
Facebook: https://www.facebook.com/stchrishospice/
Twitter: https://twitter.com/StChrisHospice
Instagram: https://www.instagram.com/stchrishospice/
LinkedIn: https://www.linkedin.com/company/2624015/

Rainbows Bereavement Support Great Britain

RAINBOWS BEREAVEMENT SUPPORT GREAT BRITAIN is a well respected national charity having a proven, positive impact on the lives of children, young people and adults grieving a significant and often devastating loss in their lives.

Our vision is quite simply for every child and young person in every school in Great Britain, grieving a significant and often devastating loss in their lives, to be understood and supported appropriately.

The principal objectives and activities of Rainbows Bereavement Support Great Britain:

  • Raising awareness of the impact of bereavement and loss on children, young people and adults
  • Facilitating high quality education and training in bereavement and loss
  • Providing practical, realistic and sensitive guidance to ensure all schools have appropriate bereavement policies and procedures  in place
  • Nurturing and developing the emotional health and mental well-being of children, young people and adults who have experienced a significant loss through death, relationship breakdown or other adverse circumstance

The work of Rainbows is tried, tested, researched, monitored and evaluated and is now in its 27th year. We know the impact of our work is long-lasting and has a tangible impact on people’s lives.

Contact information:
Andrea Rodgers – National Co-Director, South
andrea1.rainbowsgb@btconnect.com

Sharon Melia – Craven – National Co-Director, North
sharon.rainbowsgb@btconnect.com

Rainbows GB National Resource Centre
Hall Lane,
Maghull,
Liverpool
L31 3DZ
Tel: 0161 624 2269
www.rainbowsgb.org

Little Things

Little Things & Co is a baby bereavement charity. They provide emotional and practical support to those affected by the loss of a baby, regardless of gestation, circumstance or time ago.

With a dedicated Memorial Garden, support groups, tiny clothing for early babies, items for funerals (grave dressing, cradles and peace birds), as well as an extensive range of literature.
The local services are primarily based in Plymouth and the surrounding areas, yet some services are provided nationwide.

Little Things & Co. was establised in 2013 by Funeral Director LeighAnne Wright, initially providing tiny clothing. The services expanded rapidly and using LeighAnne's professional experience as well as her own loss of her son the charity goes form strength to strength helping families every day. An extended and experienced team now ensure families are cared for and supported at the most difficult time of their lives.

The charity is a member of the Alliance of Baby Loss charities and one of the official 60 charities supporting Baby Loss Awareness week every year. LeighAnne is also a member of the All Party Parliamentary Group on Baby Loss.

Little Things & Co. is an honest, hands on and community charity that is dedicated to breaking the taboo of baby loss and supporting anyone affected.

https://www.facebook.com/LittleThingsandCo/
Instagram @LtandCo
Website www.ltandco.org

About the funeral

Arranging a funeral now or in advance can be overwhelming, especially if you have never organised a funeral before.

"Who do I use?" "What are my choices?" "How much is it going to cost?" "How am I going to afford it?"

These questions are the norm.

It will never be easy to organise a funeral, but About the Funeral is here to help make the process as easy as it can be. Within a few minutes you will be able to find the cost of an affordable funeral online tailored around your or your loved one's wishes, from a funeral director or pre-paid funeral plan provider who is right for you.

Whether you're arranging a funeral or making plans in advance, it's good to know specialist help is always at hand.

Kim Bird, the founder of About the Funeral, is an experienced bereavement support volunteer and has worked as a funeral arranger for one of the UK's largest funeral companies. She has been bereaved by familial suicide and counselled for complicated grief, 8 years later.

While About the Funeral can help people with the array of practical issued faced when someone close to them dies, emotional vulnerability is unavoidable. Kim said "It's vitally important everyone knows bereavement support is available should they want it, whenever they want it. The Good Grief Trust is the best resource I know for anyone needing to find this support."

Website: https://www.aboutthefuneral.com/
Twitter: https://twitter.com/aboutthefuneral
Facebook; https://www.facebook.com/aboutthefuneral

Jessica Lawson foundation

A local Hull & East Riding of Yorkshire Community Group. It is also an associate of the UK registered charity The Rose Charitable Foundation.

Our Story
This Foundation set up by bereaved parents Antony and Brenda Lawson. Their own forget-me-not legacy in the name of their daughter Jessica Lawson aged 12. Jessica died whilst on her school trip to France on 22nd July 2015. During the years since Jessica died it is clear that no UK authority or organisation is willing to help or guide the bereft and traumatised family. No after-care plan or response from local authorities or the school. Nationally, no
assistance from The British Foreign Commonwealth Office. The complexity of a fatality abroad brings a minefield of additional heartbreak and process, policies and procedures. Any compassion or humanity forgotten. The family left to cope alone.

The Aims
Aid Be a point of contact. We signpost bereaved parents to the raft of specialised bereavement charities and trauma organisations we now know exist. Assist The Wellbeing of a bereaved parent. Be active in our grief support. The Foundation works with a network of tourism partners in the Algarve Portugal to arrange:

B’Breaks – Algarve
The holiday is planned and organised by Jessica’s Mum Brenda Lawson who with her husband Antony relocated to the Algarve in November 2017. Rest, relaxation and recharge. The positive RE words to assist you looking forward again.

The Good Grief Project

Approximately 6000 young people under the age of 24 die in the UK every year leaving up to 50,000 newly bereaved parents, siblings and grandparents.

Our mission is to support families grieving after the untimely death of a loved one, particularly the death of a child. We do this by encouraging a creative response to grief and by looking for new ways of expressing the pain of loss with various art forms and media. And to promote an understanding of what it means to grieve in a society that often has difficulty talking openly about death, dying and bereavement. We do this with our films and talks.

Contact - http://thegoodgriefproject.co.uk/contact/
Website - https://thegoodgriefproject.co.uk/
Twitter - https://twitter.com/GoodGriefProj
Facebook - https://www.facebook.com/thegoodgriefproject/

Anne Robson Trust

The Trust funds Butterfly volunteer teams to visit patients in hospitals who are in the last days and hours of their life and provide support for them and their loved ones.

The volunteers provide compassionate listening, comfort and companionship for patients in the last few days and hours of life, many of whom have few or no visitors, and would otherwise be alone. During 2016, Liz set up and ran an award-winning team of Butterfly volunteers at East & North Hertfordshire NHS Trust, and quickly realised the impact that this simple, effective scheme had on so many people.

The ultimate goal is to ensure that everyone who dies in a UK hospital has someone to speak to, and
someone to hold their hand, as they face their final days.

Website - https://www.annerobsontrust.org.uk/
Twitter link - https://twitter.com/AnneRobsonTrust
Facebook - https://www.facebook.com/annerobsontrust/
Donate link - https://www.annerobsontrust.org.uk/contact-us/
Contact - https://www.annerobsontrust.org.uk/contact-us/

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